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    October 20

    How do you view a person with a brain injury?

    Well, this is a bit of a take off from my friend Keith, but I loved reading the responses to his question. I loved the openness of people's responses and the sharing of opinions. His question was timely for me when I got "dismissed" by a woman in life in conversation during a sharing of ideas. I wondered if I had no knowledge of brain injury or didn't have one how I would have reacted. It is a different question sort of because a brain inury is not necessarily visible to the eye -sometimes people have scars on their heads where hair does not grow back. Sometimes you can sense a brain injury by non-linear conversation - or a repeatition of a thought in the same conversation. Sometimes the person while come out and tell you. There are varying degrees of brain injury as with any injury. Many people such as myself will rarely mention directly that they have a brain injury because of the feared stigma of the very word and misconceptions. I am often one of those people and I have had a brain injury for seven years now. People see me as "different" but luckily the word "artist" saves me at times. The word artist is a wonderful word -we are all creative and all artists really -living life is a creative adventure. Recently a women at one of the magazines was saying she couldn't believe the misspelled words on resumes from people that wanted to write for the magazine -I asked her if the same she felt the same about artists and photographers and joking that she would probably see the spelling as a eccentric and non-essentail thing - she said yes! ha! Fabulous! I often get away with wearing things that are different - typically do to lack of laundry planning - but recently I wore two colors together that were gosh plain bizarre and frankly startling to the eye in an "oh my" kind of way -I didn't care - the next day an intern dressed in the same two colors - coincedence maybe, but it had me chuckle. So I won't be offended -in fact it makes me want to do a book on life changes and disabilities to educate and to share - so please write your comments candidly and openly. If someone told you they had a brain injury -would you look at them differently and how? Would you feel pity? Would you question their capabilities say on a project? Would you be more skeptical of their ideas than someone without a brain injury? Second-guess them? Would you ask their advice or find someone else? It is a hard question, quite frankly before having a brain injury, i would think differently than i do now. So answer candidly, I won't be offended.

    Comments (19)

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    Picture of Anonymous
    Rett wrote:
    How do I view a person with a brain injury? Just like I do anyone else...everyone is an individual. I'm not sure how to answer your question here...I mean....if your question was: How do you view a person who is blonde? I'd answer it the same way, I guess...lol.

    Now...sometimes...if I'm out somewhere, and see a person who may have a brain injury..because they're in a wheelchair...I may think about how their daily life is....how hard it must be...and I feel sad for them...sometimes my thoughts turn to admiration...God bless them...they get out...they go to work....it can't be easy...I admire them. If I run into someone who has what maybe a brain injury, and I see that maybe I can do something for them to make the moment a wee bit easier...I'll offer my assistance (like holding the door)...just like I'd do for anyone without a physical disability.



    May 27
    I came across you site really just by chance.  Weird though.  My daughter -- who is 19 -- survived a horrific accident when she was 18.  She suffered moderate to severe brain injury (coma, life support, whole deal).  She is herself again 1+ year later -- well, herself minus some short term memory, plus some pretty terrible (and frequent) headaches.  After watching her achieve so much and fight so hard to get herself back, I would have to say I view brain injured people as stronger and MORE capable than most.  It is amazing to watch someone fight their way back.  I guess before her accident I didn't give much thought to the subject at all.  But now, after her acident and also after spending much time with others in her situation (rehab hospital patients) I have so much respect for those of you who have gone through this (and continue to).  The brain is an incredible organ.  It is amazing how one area will compensate for another.  The recovery procees itself -- although at times hard to watch (and surely even harder to endure) -- is indeed remarkable.  So I guess my personal answer to your question is that I respect and honor you and all who have traveled this long and difficult road back.  Good luck ** God Bless ** One ** Cindy
    Jan. 27
    Well, Patti, I want to know--and I want to know if I can ask you this.  I hope we are friends, and I am trying to ask an honest question.  And as I sit here, imagining the things you may have had to go through (how would I know?  How could I?) I tear up a bit.  From your blog and your writing and your activities, it seems that you can more or less function.  (Much the way I feel sometimes.)  But, without being nosy--or maybe I am--how has your injury affected you physically?  Have you explained this already in your blog and I've missed it?  I have some brain function issues of my own.  Not just trying to be funny.  I've done alot of drugs in the past, and occasionally things come back to haunt me.
    But does it--I mean--Do you have control over your body, I guess is the first question.  If not, how much do you not have control over?  I guess what makes me upset, upset with myself--and I hope that being older now I wouldnt be like this:  I would hate the idea of meeting you---and because of whatever malfunction your brain has done to you physically--I would dismiss you, and not try to get to know you. 
    Is that a problem you have?   Do you ge treated horribly?  Do people think that--  Oh, God, Patti--when did I turn into an emotional 12 year old girl?  I wish--I wish -- I wish you were better, first of all, and I wish people could see inside better.  I wish I could.  I hope I can now. because-- stupid me-- I never thought of it.
    I want to know that you lead a mostly normal life.  I want to know that you have family and friends close by.  I want to know that you can find someone (man or woman, your preference) to date, to spend some time with.  I want to know that you are happy.
    Recently, because of something you said to me, I had a . . .reconciliation.. .with my wife.  We weren't apart, but we were drifiting.  Today we spent the day together, and it reminded me of twenty years ago, when we were dating.  The fresh, the new, the flirting, the being together.  It was wonderful.
    I wish that for you.
    Apr. 14
    Hopewrote:
    Well considering in had a fractured skull at a very young age...back then they really didn't know much do did they consider it an issue..Now its looked as a problem...My parents never looked into it...years later when I had to have radiation for cancer and the cancer was located near...the fracture..that showed on the ct and mri...It because a hugs issue...
    I live my whole life kinda not viewing it as an issue...Now there are many thing that hit me right in the face...about it..
    How do I view others with a brain injury??? I don't veiw that differently but I know there are many issues that come with and we look perfectly normal.
    My husband is currently in Phyiscal Therapy and i was sitting there waiting for him the other day...A lady walked in with can....A young man about 20 had dropped off a friend for pt..who was in pretty bad shap and in a wheel chair...The young man had double parked in a handicapped place now sticker..The woman was all over him about it...She was like have you got a brain...I was sitting there jaw to the floor...His reply was yes I do..But considering my brain  was damaged and I have a brain injury..I am sorry I know better and will move the car...She was very rude and replied well your old enough to know better...I was a bit off that day...And said...Mamam..with all due respect have you ever had a brain injury???? She said no...I said * Well I have and I am older then him and there are times ..we don't connect or still even looking normal have problems ..IT is a handicap as well...She mumbled some..and said * Never thought about it that way!*  
    The thing is It bugged me..even with all my problems life is tough and a challege...but to just blow someone off  well its makes me mad...
    This young kid was incrediable and in talking to him...I realized we all have issues in life...and life goes on after crappy things happen..
    But some people just don't see beyond themselves either...They have it bad and for what ever reason can't get past it..
    How do I view others with brain injuries????
    Well I don't any different then anyone else ..Each person is so different in how they deal and what they approach it. I guess there are a million answers to that question....no right one ..we all cope differently no book on it..
     
    Thanks for stopping at my space.
    Glad you enjoyed my art and photography...It gets me over the hurdles.
    Hugs Hope
     
    Jan. 28
    Picture of Anonymous
    Jenn wrote:
    I don't think there's just one answer. I mean, how do you know the person has a brain injury, what were the circumstances of the injury, what kind of recovery will there be, etc.?

    I've been reading, and I understand that you've had an injury, and if you don't mind me asking, what happened?

    And to answer your question, yes I would look at them differently. I would either look at them in awe of accomplishment and perserverence - perhaps I would look at them as in need of a prayer for recovery. You never know, and I would like to think that when I meet someone I will always look at them as different in their own right. Me, I was the fat girl in school - I've lost the weight since then, and now people are always surprised to hear of my fear of social gatherings. Everyone has something that makes them tick differently from the others. What does normal mean anyway? Just because my husband can use the toilet standing up doesn't mean I have to find that normal to my own personal needs.

    Have a great weekend, Patti!
    Jan. 13
    Picture of Anonymous
    dresapp wrote:
    well patti
    Your the first person i know with a brain injury and i dont see you any different than anyone else in that sense. I know you may forget stuff or get confused but so do i and i dont have a brain injury. I do however know what its like to have some limitations in life and to be treated differently by ppl. I feel i understand you in some ways better than others but i see you as a great person who has overcome alot. I try not to judge ppl for thier disability or limitations.

    Kristy
    Dec. 30
    Picture of Anonymous
    Thotman wrote:
    a brain injury?...completely NORMAL...after all, how a brain functions before or after such a trauma is not a comparison...it is simply a current state...some folks with brain injuries are brighter and swifter than those of us who have never had one...and simply function on a more restricted level...
    Dec. 15
    Picture of Anonymous
    _Advocate wrote:
    gosh, thi is't a fair question for e to answer, havvvnn been in the fild of knwi such a variety of Brain ijury victims whether from accident, injury or birth, or surery...

    Yu are ucky i that YOU ARE an artist beau that coms with the ARTISTIC.. UmmCEATIVE Mind, hich brins to normal thinging, ( UNIQUE PERSONALITY)

    am used to the ood swingse, the depsion, the tireddnes, th sorterm memory, the rattling of each..
    to the severe, of the people who ask the same quetion every few minutes, and forget what the are doing non stop.. MUCh harder t deal with..
    TE SEVERE.. and thee ARE OBVIOUS..

    it's the UNSEEN TRAMA that is hard..
    I do not see that NOT telling does anyone any favors..

    maybe the secrecy we keep in our illnesses, is part of the reason opeople are so unaware, and so insensitive to theCOMMON poblems and plights of so many Hundreds ofr tosands of american's and ople al over th world/??


    t'samajorcach 20/20

    idivida choice.. but aaHGE PUBLIC ONE...

    If peole see it as sometng UMANS overcomewith ISSUS, but do not SLAck on with ity , and lack of FORARD MOVEMENT I think thhy old Look atit th same s thy do marahn runners ithhprosthec legs, people just outo make the best of life, instead of stayyyin the coner ad hide out...

    It seems tat is whathe Government tries to do wth any disability...
    idus awayy, make certtain heey ts WWE CANNOT.. som e are lucky have a talent o gettby without having to go thoogh rhab and spcial INSURANCE and al, and be able TO WORK...

    Most of us want o, SEN oUNSEdisability..
    e antobe seen assABL, and WOrhhwhile..

    Just my Opnion...

    {{{{{{{{{{{{{{{{ Love and Huggls }}}
    ra Queston...

    I am Biased... even ough half of mine is tauma, b themain source is genetic..
    Oct. 23
    Picture of Anonymous
    msKaters wrote:
    What to say to the awesome comment you left me. Me inspire someone? Nah. Thanks though, but you know I learn and am inspired by you too so we are even! -kate
    Oct. 22
    Picture of Anonymous
    FunkeyCeili wrote:
    Patti,
    I just noticed in your comment on Colin's site that you are a Penn State alumnus? So is my brother...AND my stepmother (she is only 40 so it wasnt that long ago!). Just thought I would throw that in there. I spent several weekends up at "Happy Valley" visiting a guy I was dating..that was years ago though! :-)
    Oct. 22
    Picture of Anonymous
    one_big_pain wrote:
    All of us have our eccentricities. I think you're on to something with your "artistic license". When we know enough about someone to "blame" the oddities on we can accept it and move one. So I would have to say if I didn't know someone had an injury I might walk away after a conversation thinking "Hmmm." (People think that about me all the time too, though.) But if I knew it would be easy for me to overlook what some people would call the quirkiness.

    I'm glad for your openness, explaining when you ask for help you don't necessarily want things done for you, but instead wish to know the steps needed to accomplish whatever task. We want to help, but sometimes there's such a thin line between helping and interfering. Just like you, sometimes we just don't know the right way to do things, we need to be taught.

    You're a gem, and you have certainly brightened my corner of the world with your words! -c
    Oct. 21
    Picture of Anonymous
    FunkeyCeili wrote:
    Ooops! Forgot to mention...thats totally fine if you add me to your links! I added you a few weeks ago! :-) Thanks for thinking enough of me to do so!

    Take care!
    Shannon
    Oct. 21
    Picture of Anonymous
    FunkeyCeili wrote:
    Patti,
    Thanks for your comment. As far as my gassy little buddy, who knows what he eats at home. I dont think its a matter of going to the bathroom at school...he seems to be okay with that. But who knows...its just so embarrassing, and he doesnt have the ability to be embarrassed...I just dont think he understands it, if that makes sense. My kids have no shame, I tell ya!

    Take care and have a great weekend!
    Shannon
    Oct. 21
    Picture of Anonymous
    Arielscure wrote:
    I use to think of a person form a move called Regarding Henry... good movie. Now when I think about brein injuries I think to myself: A good friend!
    I made it back to the midwest alive!!!
    Still not home (My spiritual journey continues till Saturday).
    I hope you'll have fun with your Mom!!!
    Oct. 21
    Picture of Anonymous
    FunkeyCeili wrote:
    Patti,
    Its hard to say what I would think because a brain injury is not one of those things that stands out like a physical disability. Can people tell you have a brain injury just from talking to you? I dont know if I would know someone had such an injury unless they told me or it was VERY apparent. I remember a guy that went to my high school who was in a car accident. He was much different after the accident...in fact, he was pretty much an asshole before the accident, but became a lot of fun and was really nice afterwards! How strange is that?
    Anyway, I dont think I would make a judgement. I would talk to you first and then you would probably clue me in to your injury...otherwise, I doubt I would have any way of knowing. And even after I did know, I dont think it would make me think any differently. Like Mandy said, I would admire you for what you have overcome. :-)
    Wait...you have already told me you have a brain injury, and I already DO admire you for what you have overcome!

    Take care!
    Shannon
    Oct. 20
    Picture of Anonymous
    Colin wrote:
    Patti,

    To be honest, I have very little understanding of brain injuries and what people with brain injuries have to go through. I am at the hospital two to three days a week doing rehab and visiting, and I always see people suffering from brain injuries. It's tough to know how to react because people who suffer from brain injuries are all very different. Unless you read their medical chart you have no idea whether they understand what your saying, can speak, can hear, can control their motor movements etc.

    When I was first injured I found people brain injuries very intimidating. I never knew how to react or respond to them. These are people however who were still very debilitating and in the beginning of recovery.

    Are there any signs you show that tell people you may have a brain injury before you tell them? If not, when you told me you had a brain injury I would not be affected by it at all. If I felt comfortable with you I would go on to ask how the injury still affects you. I would probably be very inquisitive since I have little understanding of brain injuries.

    My cousin suffered a brain injury and fully recovered pretty much. He has trouble remembering sometimes and has no sense of taste. We had a family gathering a while ago he and I spent hours discussing each others disability. I found everything he had to go through in rehab very fascinating.

    In short, I highly doubt I would be intimidated by you or pity you. I think I would probably respect and admire you instead.

    Colin
    Oct. 20
    Picture of Anonymous
    UnawareBurrito3 wrote:
    Hi Patti:

    I deal with this sort of thing often. Both in having a brain injury myself and dealing with employees who have no end of needs.

    I would simply ask what accommodation you might need in order to help you complete your project well. If you were unsure, I would ask you if you wanted to be refered to a specialist in accommodation and, if yes, I would do so.

    And most importantly I would respect your opinions and respect you as an individual. I would respect your contribution to the project and respect your privacy.

    I could go on forever but I will stop here.
    Love and hugs to you Patti
    John
    Oct. 20
    Picture of Anonymous
    behindisdonetodayisnew wrote:
    okay patti,
    i think, actually i know i am and would be intrigued..i would ask many questions if the person responded well to my first question...you know, kinda feel out the person...do they want to discuss this or should it be minor issue...as far as trusting them on a project, well just like any employee i have ever had, i would ask is this something you can do, can you do it alone, or do you need help...i also ask if this will interfere with perhaps daily chores or job related schedule.
    would i look at them differently...well i like to believe i look at every one differently...i love people and enjoy meeting new people and hearing what they have to say, offer, share or educate me on...we are all teachers, we are all students...and since the brain is not visible to the eye...who is to say who has a fully functioning brain, isn;t it true that many of us use less than others, and many of us use more or different parts...and what about the term idiot savant....okay in one area, or really most areas these people cannot function, yet be it music or numbers, etc...these same people are considered genius...the brain is indeed a mystery and even if we knew everything about the brain each brain is different, unique, as are all people...gosh i got carried away...see my brain loves to chatter, think, listen, explore thoughts and people....
    okay i will end for now...hope your day is super.
    IN HIS GRIP
    JC
    Oct. 20
    Picture of Anonymous
    Mandy wrote:
    When I think about a brain injury, my mind automatically pictures someone in some type of vegatative state in the hospital. A very sad situation.

    But, when I meet or hear about someone like yourself that has healed past their injury. I think of a miracle.

    It doesn't make me think differently of you. It makes me think of how amazing you are for healing and it is intriguing.
    Oct. 20

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